How to Start a Sarcoma Support Group, Miranda Kramer RN, MS, July 2004

Anyone can start a sarcoma support group. That anyone could be You! Sarcoma support groups are currently few and far between and there is definitely a need for more groups. Here you will find some of the nuts and bolts of starting a support group. Each ...

The Sarcoma Alliance offers a live chat room:

Chat now! The Sarcoma Alliance offers a live chat room: http://www.sarcomaalliance.org/cgi-executables/anyboard.cgi/anyboard9/forum?cmd=gochat Open 24 hours a day. Drop by any time you need support, encouragement, or just want to talk to others. We also offer these regularly scheduled chats: Sunday, 8:00 PM to 10:00 PM Eastern Standard Time (5:00 PM to 7:00 PM Pacific Standard Time) and Wednesday, ...

The Association of Cancer Online Resources, Inc. (ACOR)

ACOR is a charitable organization, dedicated to providing information and support to cancer patients and those who care for them through Internet mailing lists and Web based resources. The SARCOMA list is just one of approximately 100 mailing lists within ACOR, and has 340 individual subscribers as of this writing. Subscribers are sarcoma survivors, caregivers, friends of those with sarcoma or medical ...

Arizona: Sarcoma Support Group at Arizona Cancer Center

The Arizona Cancer Center would like to invite you to our quarterly Tucson Area Sarcoma Support Group. We have formed an exciting partnership with The Arizona Cancer Center. All meetings will take place at the AZ Cancer Center, North Campus, 3838 N. Campbell Ave., Tucson - Room 1290, from 3:00 - 4:30 pm MST. This meeting is for sarcoma survivors and caregivers. All are welcome. Parking is free. Refreshments will be served.

This will be a great place to connect face to face with people affected by soft-tissue and bone sarcoma; to share valuable information and gather support. We hope that you can join us.
The quarterly meetings will take place in mid January, April, July, and October. Detailed information will be sent to you - upon request.

For more information, please call oncology social worker, Jill Winter at (520) 694-0845 or jwinter@uncaz.edu

California: Attention Los Angeles Area Sarcoma Patients, Survivors and Caregivers

The Sarcoma Alliance would like to invite you to our monthly Los Angeles Area support group. We have formed an exciting partnership with The Cancer Support Community (South Bay Cities) in Redondo Beach . All meetings will take place at The Cancer Support Community ( www.wellnessandcancer.org ). This meeting is for sarcoma survivors and caregivers. All are welcome. Please contact the Alliance at info@sarcomaalliance.org. Click here for more info.

Cedars-Sinai sarcoma center http://www.csmc.edu/11728.html has a sarcoma support group that meets the third Wednesday of each month; 12:00pm - 1:30pm. Cedars-Sinai's Outpatient Cancer Center Mezzanine Conference Room 8700 Beverly Blvd Los Angeles, CA  90048 For information and to attend RSVP 310-423-1190 Lunch will be served. You don't have to be a Cedars-Sinai patient to attend.

California: Sarcoma Oncology Center, Los Angeles

The Sarcoma Oncology Center has a support group for sarcoma patients and their loved ones for mutual support, comfort and friendship. Meetings are held on the first Sunday each month at 2811 Wilshire Ave, Suite 414, Los Angeles, CA. There is free parking on Wilshire. For more about the Sarcoma Oncology Center visit www.sarcomaoncology.com or call 310-552-9999.

Georgia: Support Group at Emory Hospital in Atlanta

Meetings generally third Wednesday of the month. Click here for info.

Massachusetts: Sarcoma Support Group at Dana-Farber Cancer Institute

Support group for sarcoma patients and family members. The group meets the second Monday of each month, 12:30-1:30pm, in the Dana Building,
Room 1615 . Parking is validated in the Smith Garage (located at One Jimmy Fund Way). Registration is required. Call Larissa Hewitt, LCSW at 617-582-7548 to register or for more information. Parking is free for participants in the Dana-Farber Yawkey Building garage.

Nebraska: Sarcoma and GIST Support Group in Omaha

The Methodist Estabrook Cancer Center is hosting a support group for those affected by sarcoma. The location is the Midwest Cancer Center Community Room, 17201 Wright Street, Omaha, Nebraska. Upcoming dates are March 10, 2011 for a group discussion and May 12, 2011 with a guest speaker. The time is 5:30 - 6:30 PM and a light snack is served. For more information please contact Lori Simpson at 402-398-6267 or Peggy Jarrell at 402-354-4213.

Ohio: Sarcoma Support Group at The James Cancer Hospital at Ohio State University

A new sarcoma support group in Columbus, Ohio started in June, 2006. The group meets the last Tuesday of each month from 6:00pm to 7:30pm. Martha Morehouse Plaza (The Ohio State University), 2050 Kenny Road, Suite 3300, Columbus, Ohio 43221. Patients, family members, friends are all welcome. For more information please contact: Martha Crist, RN, BSH, 614-293-4420 or martha.crist@osumc.edu.

South Carolina: Attention Greenville, South Carolina Support Group

A new Sarcoma Support Group in Greenville, South Carolina begins July 24, 2006. Meetings will be held every 4th Monday of the month at 7PM. The meeting place is the library at Edward Road Baptist Church at 1050 Edwards Road, Greenville, SC. For current information contact Beth Lagrange at 864-254-0333 or email at ben.lagrange@alumni.clemson.edu

South Carolina: South Carolina Virtual Community

Sarcoma Warriors of the Upstate. A virtual community of sarcoma fighters that that never leaves a man behind. Warrior members are instantly welcomed into a network of other current and past sarcoma fighters and their families, friends, and support groups. Support comes from the emotional web that is weaved with fellow survivors and for those in need, there is limited and targeted financial support as well. For more information about the group or our community activities, please visit and explore http://sarcomawarriors.org and join our family on Facebook to keep up with all of the latest news and events.

Wisconsin: Sarcoma Support Group in Central Wisconsin

A sarcoma support group in Central Wisconsin met for the first time on Wednesday June 16, 2004. Ongoing meetings take place at the American Cancer Society Hope Lodge in Marshfield, WI at the downstairs meeting room, from 6-7 pm, on the 3rd Wednesday of each month. Richard Nesbitt will be running the support group. At the first meeting members were polled on future...

Sarcoma Subtype Support Groups

Chordoma Support Group
http://ca.groups.yahoo.com/group/Chordoma_Support_Group/

Chondrosarcomama Support Group
http://www.chondrosarcoma-support.org

Uterine Leiomyosarcoma and Hormone Therapy Discussion Group
http://health.groups.yahoo.com/group/ULMS-HormoneTherapy/

Rare Vascular Cancers including Angiosarcomas
http://www.heardsupport.org/index.html

Stage 4 Cancer Forum
This site was started by a woman in Sweden who was diagnosed with synovial sarcoma in September 2004. She has gone through 12 radical surgeries, 18 months of chemotherapy treatment and some 80 radiotherapy sessions since then. You can read her story here http://stage4cancerforum.com/story/veronicas-story/#more-56 . She also has put together a website for support www.stage4cancerforum.com

International Support Groups

United Kingdom
http://www.sarcoma-uk.org/support.htm